Addi and Cassi Need Your Help
December 11, 2007 | Life
Dear Family and Friends everywhere:
So many of you have called, emailed and sent cards over the past seven weeks asking how you can help Addi and Cassi in their battle against Niemann Pick Type C disease. We wanted to let everyone know that we have set up a website and blog for Addi and Cassi which is located at http://www.addiandcassi.com.
Many of you have asked us how you can make monetary donations or what else you might be able to do to directly help our family. We have an entire webpage on the website as to how you can help. In addition, we have established a research fund called the Addi and Cassi Fund to accelerate near term therapies for the girls. This new fund is set up through the Ara Parseghian Medical Research Foundation and will be 100% directed by our family. You will find all the information you need about the new fund on the website.
Christmas is just around the corner and we have a few big wishes this year. Our first wish is that the new Wishes Box we have set up on website fills up with messages from people all around the world. Please help us make our wish come true by spreading the word on NP-C and this lethal cholesterol disease. We are asking that everyone who receives this email forwards it on to their network of friends and family so we can spread the word worldwide. If anyone can help get the word out and drive awareness for NP-C, it’s our wonderful network of friends and family!
Our second wish is that everyone who receives this email considers making a financial contribution to help children afflicted with this devastating “Childhood Alzheimer’s”. We hope you will take a few minutes to read the website and our blog posts, as many children are being denied medication by their insurance companies and can not afford the astronomical price of potential lifesaving drugs.
We are doing everything we can to utilize our relationships, skills and resources to move the ball forward for the entire NP-C community and to solve this cholesterol mystery once and for all. We are also challenging the medical system to do things entirely differently in the way of treatments for Addi and Cassi, which we believe will have an impact on how other rare diseases can be treated in the future.
Finally, we have set up a mailing list on Addi and Cassi’s website and have taken the liberty of adding your name to this list. You will continue to get email from us periodically. If you prefer, you can remove your name from the list by using the links below. If you are not on the original email and this has been forwarded to you, you can sign up for the mailing list here.
We intend to keep AddiandCassi.com updated regularly with blog posts. We appreciate all your support to help us remain positive and get our message out to the world.
Peace To All During This Holiday Season,
Much love,
Hugh and Chris Hempel
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