The San Francisco Giants are raffling off a World Series ring identical to those the players and staff received. The proceeds will benefit the club’s community service arm known as the “Giants Community Fund.” The winner’s last name will be engraved on one side of the ring, which was designed by Tiffany & Co. and features … read more here
Giving Back
Rare Disease Health Leader Visits Orange County Non Profit
February 24, 2011 by
Local advocates looking to kick-start research to help patients with rare diseases got a boost Wednesday afternoon when an official with the National Institutes of Health stopped by to talk. Dr. Stephen Groft, director of the NIH’s Office of Rare Diseases Research, visited with a Dana Point nonprofit group aimed at building a community for … read more here
NIH, Pfizer, Shire To Hold Rare Disease Day 2011 Denim Awareness Events
January 26, 2011 by
GLOBAL GENES PROJECT ANNOUNCES “WEAR THAT YOU CARE™” DENIM AWARENESS CAMPAIGN FOR RARE DISEASE DAY 2011 Statistics Show 95% of Rare Diseases Have No FDA Approved Drug Treatments; Only 352 New Drugs Developed and Approved For Tens of Millions of People Since 1983 DANA POINT, Calif. – January 26, 2011 – Monday, February 28, 2011, … read more here
Help Kids With Rare Genetic Diseases By Donating A Bracelet For Hope
November 1, 2010 by
7,000 Bracelets For Hope™ – A Rare Disease Awareness Campaign Global Genes Project Launches Blue Denim Inspired ‘Cause Bracelets’ To Be Distributed To Families Facing 7000 Different Types of Rare Diseases DANA POINT, Calif. – November 1, 2010 – The Global Genes Project (www.globalgenesproject.org), a non-profit advocacy organization that aims to raise awareness about the … read more here
Push to Cure Rare Diseases
March 10, 2010 by
CLAREMONT, Calif.—Staff members at the Food and Drug Administration are doing something unusual. They are leaving Washington to help drug makers take a crucial step in developing drugs for rare diseases. The staffers help administer the Orphan Drug Act, which provides incentives to create therapies for so-called orphan diseases—those that affect fewer than 200,000 Americans. … read more here
Rare Diseases Impact Estimated 250 Million People Worldwide
March 8, 2010 by
250 Million People Worldwide Estimated To Suffer From Rare Disease Global Genes Project Building International Network of Rare Disease Advocates Committed to Bringing Rare Disease into the Forefront Year-Round DANA POINT, CA – March 8, 2010 – The Global Genes Project (www.globalgenesproject.org), a worldwide rare disease awareness initiative, today announced the success from its World … read more here
